The Boy whose Skin fell off, Anybody seen this? Options

[6th_celi_vert]

I watched this show on TLC. Now let me say, im usually a cold hearted A$$hole (for lack of better words) but this show literally broke me down. it was horrible. This guy has some kind of skin disorder, his name is Jonny Kennedy. He had been horribly disfigured (he dies at the end of the show) by this illness where his skin, when barely touched, comes off in large portions. In the midst of being in a wheelchair, getting ready to die, and having cancer...he still smiles, cuts up, and tells everyone greiven with sadness about the way he is that everything is gonna be alright. He goes and picks out a coffin. He makes them engrave a Heinz ketchup bottle on the side of it. when asked why? he says "that will give them all something to talk about...i can hear them now...'what the hell is the deal with the ketchup bottle?'...in reality there is no meaning"

He dies at the end of show...just as he planned, he said he wanted his story to be known. It shows a solid 10 minutes of his lifeless body in the wheelchair. Why, i dont know. but it does.

It was just very interesting. Made me realize that in midst of me going through my father having drug and alcohol problems, trying to get back into school, and ending a two year relationship...other people have it worse, and this lil guy is even smiling about it.



R.I.P Jonny kennedy.
1967-2003

This post has been edited by 6th_celi_vert: Oct 25, 2006 - 10:34 PM

[orvillescelica]

TLC has this great "series" of documentaries about people terminat rare diseases liek this. I saw this other one called "ther girl who turned to stone." She has a rare disease where her muscles turn into bone after an injury. And of course, the diseases causes her bones to break easily, so it happens frequently. She was like 6 and wants to be a dancer, but of course with half her body turning into bone, thats impossible. Her body will slowly turn into bone until she will no longer be able to move and then finally her bones crush her lungs. It was SO hard to watch, i dont know if i could handle the one you saw.

[Jeremy1210]

TLC has this great "series" of documentaries about people terminat rare diseases liek this. I saw this other one called "ther girl who turned to stone." She has a rare disease where her muscles turn into bone after an injury. And of course, the diseases causes her bones to break easily, so it happens frequently. She was like 6 and wants to be a dancer, but of course with half her body turning into bone, thats impossible. Her body will slowly turn into bone until she will no longer be able to move and then finally her bones crush her lungs. It was SO hard to watch, i dont know if i could handle the one you saw.

Yeah not too many people have that disease where the bone just keeps growing. The guitarist for motely crue has that and man he's on soo much morphine to keep him just able to play the guitar. Watching him move, or try ot move just looks painful to me.